A new charity has been set up – Salivary Gland Cancer UK. It aims to set up a support and information network for patients and those treating them.
Patients who have a rare cancer face additional problems. It can be difficult to find the funding needed for research in to causes, identification and treatment, Getting sufficient numbers for a clinical trials can be near impossible. It will also be far more difficult to find relevant peer support.
The charity aims to build alliances with other groups working to support those with rare diseases.