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EHNCA Coffee Morning

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We returned to the historic Eyre Chapel for our second fund raising coffee morning. Once again we were raising funds for NALC as well as our own group.

It was a damp and rather gloomy morning but by 11-00am the room was full of guests. Marjorie Thorne’s baking, as always, was selling well, not just for immediate consumption but for taking home for tea!

With a raffle, table sale and a “guess the cake’s weight competition” as well  we managed to raise around £200. We thank everyone who turned up to support the event and for their generous donations.

A Busy Autumn

The end of the summer holidays will see a crowded calendar for our members.

On August 30th we will have a stall at a “Living With and Beyond Head and Neck Cancer” event at Chesterfield Royal Hospital. Our members have assisted with an ambitious new initiative from Abi Miller, SLT. She has devised a programme of support to help patients cope with the lasting effects of treatment. The marketplace event we are attending concludes the programme.

On September 13th we welcome representatives from ATOS and Countrywide Supplies to advise us (and guests) of new products and developments in prescription items for laryngectomees.

September 19th-23rd is European Head and Neck Cancer Awareness Week. We will be holding a Coffee Morning at The Eyre Chapel to raise funds for NALC and HNChelp and also publicise the early symptoms of head and neck cancer.

Summer Evening Meal

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This year we organised our Summer  Meal at our “home base”, The Olde House. Despite competing with the England football match against Slovakia, there was a healthy turnout of members, who were able to follow the score from the cheers and groans from a nearby bar.

Patient Involvement In research

The National Cancer Research Institute (NCRI) is looking to recruit new head and neck cancer patients or carers to join the Head and Neck Clinical Studies Group . The CSG meets at least twice a year and there are Subgroups and/or Working Parties, which meet in the intervals between the main Group meetings.

NALC has had members on the group for many years. New members are given lots of training and support. If you are interested please follow the link below.

www.ncri.org.uk/2016-ncri-consumer-recruitment

NALC AGM

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On Monday May 16 our Secretary, Malcolm Babb, was re-elected as the NALC President, having first been appointed  to this office in 2013.

These are uncertain times for NALC, with Macmillan phasing out its funding. Clubs, members and other individuals have responded magnificently to the challenge of raising funds, but maintaining an office and two staff sets a high bar.

The Annual Report gives a clear indication of NALC’s work done for public benefit. The officers, staff and committee of NALC are determined to continue to support laryngectomees in adjusting to their life-changing surgery, as they have done for over 40 years, with the assistance of members of our 60+ affiliated clubs.

(The Annual Report will be available shortly on our resources page)

Tony Curtis

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It was with great sadness we learned of the passing of Tony Curtis.

Tony became involved with the group when it was re-launched in 2006. For a couple of years he was Secretary and Treasurer! Without his hard work and commitment the group may not have survived those years. He finally stood down as Treasurer in 2014.

Tony’s friendship will be missed, he had a great sense of fun and we enjoyed his dry humour. We send condolences to his daughter Alison and family.

The Rotary Club of Clay Cross

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HNChelp has once again received generous financial support from The Rotary Club of Clay Cross. The picture above shows our Secretary, Malcolm Babb, accepting a cheque from Rotary Club President, Neil Greatorex, last week.

We are very grateful for this support. Finding funding to maintain existing services is far more difficult to obtain than for a new project. Whilst we have increased the number of our own fundraising events, this donation is very welcome indeed.

AGM 2016

We held our AGM on Tuesday March 8th at The Olde House.

Members received an Annual Report which is now available on our “Resources” page.

Details of the election and appointment of Officers are given on the “People” page

New Developments in Voice Restoration

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Abi Miller, Clinical Lead SLT for Head and Neck Cancer, at Chesterfield Royal joined us to give a presentation, after attending a recent 3 day masterclass in Birmingham

Abi is seen with Ray Mountain, receiving from HNChelp a donation towards her expenses in attending the event.

Members learned of developments in the treatment of head and neck cancer. Perhaps the most fascinating were about the work of Eric Blom in the USA, who with Mark Singer had originally introduced the use of a voice prosthesis (speech valve). It was good to learn of developments which should lead to longer lasting valves and easier procedures to make a puncture for a valve. More details of Abi’s talk will appear in the Resources page shortly.

HNChelp is grateful to Abi for joining us and giving a talk enjoyed by all of us.

Chesterfield Royal Hospital

Today Chesterfield Royal allowed our members to have a stall at the hospital’s Information Point.

We were raising funds for both HNChelp and NALC and the total of the donations received was £150. We thank patients, visitors and hospital staff for their generous support.

We also gave out leaflets advising on the early signs of head and neck cancer, given the importance of early presentation and diagnosis in surviving cancer.

All our members present enjoyed meeting and talking to both the public and medical staff.